Back and forth

A quick update:

• Yesterday morning, Lucas pulled his feeding tube out
• His nasal cannula was essentially falling out so they took it off to see how he'd do off O2
• He fed most of the daytime orally, and had the feeding tube reinserted late in the evening since he was getting tired and needed more food to keep his energy up.
• His oxygen level is stable and he is essentially breathing on his own, with a few dips which he self corrects

• Today, he continued to feed orally (either breast or bottle) for 30 mins and then finished up what he couldn't eat through the tube.
  
• He eats more in the morning and during the day than late at night and in the middle of the night
• Today he was weaned to 0.1 ml of morphine from 0.15ml; such a small amount, but it really affected him. We gave him tylenol to help, but we'll see if he needs a small dose of morphine to help with his withdrawal
• It was hard to see my child suffer and all I can do was hold him and try to comfort him as much as I can

Tomorrow (Thursday) we wait for his lab results for his bilirubin level, and his liver enzymes levels. They are also testing him for any metabolic diaorders in his liver. We'll know more soon.

Here's a picture of Grammie with Lucas, shortly after she got into Seattle yesterday. Good night.